The world's largest observatory
DM-Scope has been able to recruit more than 2800 patients with dystophies myotonic on the whole of France. Making it the largest observatory in the world.
The observatory has already made a significant contribution to improving medical care and to answering major questions for international research in Myotonic dystrophies.
He showed that the symptoms of Steinert’s disease could be different depending on whether you are a man or a woman.
For example men, less diligent for their medical follow-up, especially in cardiologists and respirologists, would have more serious cardiac and respiratory complications than women.
Women would more often exhibit endocrine disorders (diabetes, thyroid problems), digestive disorders and cataracts. Differences that need to be taken into account for your follow-up.
DM-Scope has also revealed different patterns of disease evolution depending on the age of onset of the disease.