DM-SCOPE

French Observatory of Myotonic Dystrophies

NEWS

The DM-Scope team is one of the partner registers of the European Reference Network for rare neuromuscular diseases: https://registry.ern-euro-nmd.eu/our-partners/

Guillaume BASSEZ – Dalil HAMROUN – Marie DE ANTONIO – Melinda GYENGE 

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OUR STUDIES

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Significant results

Certified expert neuromuscular centers

Follow-up assistance tools in response to the needs of health professionals

A link to biological sources for basic research

Quality of life scales useful to accompany the modules dedicated to the recruitment of patients for clinical research

Common publications for all projects backed up

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