DM-SCOPE
French Observatory of Myotonic Dystrophies
Choose Us
A principle based on reciprocity
An innovative platform created with future users
Tools to support follow-up in response to the needs of health professionals
A link to biological sources for basic research
Quality of life scales to support modules dedicated to patient recruitment for clinical research
Joint publications for all projects supported
A global and personalized approach
Accompaniment of tool design to its implementation and applications
Facilitating meetings between opinion leaders
Development of custom-made features
Integration of data quality control programs
On-line collection and capture training
Data management and statistical analysis
An operational excellence
A multidisciplinary team for translational research
Expertise in basic and applied research
Significant experience in facilitating professional networks
Specialist in the development of clinical and therapeutic monitoring tools
Expertise in biostatistics (epidemiology, original multivariate analyses, cartography)
Privileged partners
A close link with all actors of the current and future health journey
10 years of collaboration with 150 Filnemus clinicians
Working closely with accompanying professionals (AFM-Telethon)
Reflections and common actions with patient representatives
Support for several research projects carried out by the French Task Force
Partners of European and international think tanks on rare diseases
OUR STUDIES
Significant results
Certified expert neuromuscular centers
Follow-up assistance tools in response to the needs of health professionals
A link to biological sources for basic research
Quality of life scales useful to accompany the modules dedicated to the recruitment of patients for clinical research
Common publications for all projects backed up