French Observatory of Myotonic Dystrophies


Capture d’écran 2021-02-08 à 17.12.28

First resolution of the year: advanced communication as mentionned in the tweet above posted in January.

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Guillaume BASSEZ – Dalil HAMROUN – Melinda GYENGE 

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Significant results

Certified expert neuromuscular centers

Follow-up assistance tools in response to the needs of health professionals

A link to biological sources for basic research

Quality of life scales useful to accompany the modules dedicated to the recruitment of patients for clinical research

Common publications for all projects backed up